Policy and data scientists have paid ample attention to the amount of data being collected and the challenge for policymakers to use and utilize it. However, far less attention has been paid... Show morePolicy and data scientists have paid ample attention to the amount of data being collected and the challenge for policymakers to use and utilize it. However, far less attention has been paid towards the quality and coverage of this data specifically pertaining to minority groups. The paper makes the argument that while there is seemingly more data to draw on for policymakers, the quality of the data in combination with potential known or unknown data gaps limits government’s ability to create inclusive policies. In this context, the paper defines primary, secondary, and unknown data gaps that cover scenarios of knowingly or unknowingly missing data and how that is potentially compensated through alternative measures. Based on the review of the literature from various fields and a variety of examples highlighted throughout the paper, we conclude that the big data movement combined with more sophisticated methods in recent years has opened up new opportunities for government to use existing data in different ways as well as fill data gaps through innovative techniques. Focusing specifically on the representativeness of such data, however, shows that data gaps affect the economic opportunities, social mobility, and democratic participation of marginalized groups. The big data movement in policy may thus create new forms of inequality that are harder to detect and whose impact is more difficult to predict. Show less
In this article, I elaborate the concept of narrative navigation to analyze the subjective and intersubjective ways in which people struggle through experiences of illness by constructing multiple,... Show moreIn this article, I elaborate the concept of narrative navigation to analyze the subjective and intersubjective ways in which people struggle through experiences of illness by constructing multiple, ambiguous and non-linear narratives that may continuously change, as they reposition themselves within changing circumstances. Drawing on ethnographic material on HIV care in Aceh, Indonesia, I show how subjunctivity and open-endedness are crucial narrative ways in which people living with HIV, their relatives, medical doctors and support group workers adjust to possibilities and limitations of care over time, thereby continuously negotiating what good care may be. Unfolding within a changing Indonesian healthcare system, their narrative navigations reveal caregiving to be a complex and contradictory process, thereby problematizing boundaries between good care and neglect. Show less
In this article, I focus on the active fostering of subjunctivity in processes of narrative worldmaking. Drawing extensively from the narrative of an HIV‐positive woman in Indonesia, I show that by... Show moreIn this article, I focus on the active fostering of subjunctivity in processes of narrative worldmaking. Drawing extensively from the narrative of an HIV‐positive woman in Indonesia, I show that by subjunctively leaving open multiple narrative trajectories and future possibilities, individuals may navigate the ethical complexities of their lives and maintain relationships with the world and others while staying true to the things that really matter to them. I suggest that although entertaining a range of possible future trajectories may involve constructing several alternative narrative plots, most of the time there is no plot to be followed, and not determining future parallel plots may be more helpful in balancing conflicting ethical demands. By not imagining clear beginnings and endings of narratives yet actively retaining narrative possibilities, values that may seem incompatible in the present may then all be kept open for future moral striving. [narrative, subjunctivity, ethics, HIV] Show less
This dissertation addresses the question of what it means to remake everyday life in the shadow of disaster. Focusing on the city of Banda Aceh, Indonesia, in the years after the devastating Indian... Show moreThis dissertation addresses the question of what it means to remake everyday life in the shadow of disaster. Focusing on the city of Banda Aceh, Indonesia, in the years after the devastating Indian Ocean tsunami of December 26, 2004, it explores how tsunami survivors have been remaking the everyday ever since that moment. Based on ethnographic research in the post-disaster years, the five chapters of this dissertation discuss various dimensions of the remaking of everyday life that were important to the tsunami survivors, including the reconstruction of houses, interactions between survivors, international organizations and the state, the narrative experiences of the tsunami, the process of grieving and its entanglement with Islam, the creation of collective memory and forgetfulness in urban space, and ideas about the future that build on notions of moral and socio-economic improvement. In these chapters the concept of subjectivity is used to show how individuals creatively shape their lives in the context of tremendous social, economic, and political changes. The dissertation concludes that the anthropology of disaster, that has up to now predominantly focused on post-disaster social change and continuity and on structural historical patterns of vulnerability and resilience, can be enriched by ethnographic studies of subjectivity. Show less
