This paper explores how Burundian adolescents in the Nakivale refugee settlement, Uganda, experience umwidegemvyo, loosely translated as “freedom”, with regard to their sexuality. We draw on... Show moreThis paper explores how Burundian adolescents in the Nakivale refugee settlement, Uganda, experience umwidegemvyo, loosely translated as “freedom”, with regard to their sexuality. We draw on ethnographic research conducted between August and November 2017 with adolescents aged 13–19 years. Our research included in-depth individual interviews, focus group discussions, and participant observation. We present a context-sensitive appreciation of “freedom” and its social implications for adolescents’ sexual and love relationships. We show how adolescents attribute their sexual experiences and practices, including experimental sex, stress-relief sex and transactional sex, to the freedom experienced in the refugee context. Yet they also view this freedom with ambivalence: while some degree of freedom is desirable, too much is referred to in terms of kutitabwaho n’ababyeyi, loosely translated as “parental neglect”, implying a lack of parental involvement, care and provisioning. Show less
Vandekerckhove, P.; Mul, M. de; Groot, L. de; Elzevier, H.W.; Fabels, B.; Mohammad, S.H.; ... ; Manten-Horst, E. 2020
Purpose: Participatory design (PD) is a collective creative design process involving designers and nondesigners. There is limited reporting on the experience of using PD for adolescent and young... Show morePurpose: Participatory design (PD) is a collective creative design process involving designers and nondesigners. There is limited reporting on the experience of using PD for adolescent and young adult (AYA) care. This study summarizes lessons from employing PD to develop care for AYAs with cancer.Methods: A qualitative multiple-case study method was conducted of three PD processes addressing food (FfC), intimacy and sexuality (I&S), and integrative medicine (IM) in caring for AYAs with cancer.Results: Local key stakeholders, who were exposed to a problem and had not been successful at solving it individually, were recruited to "dream" together. Through this synergy, a shared understanding of the problem and a joint mission emerged to find a solution. PD tools were used to develop a problem definition. An open mind and explorative research helped to understand the problems, and stakeholders were managed such that idea-sharing and learning were enabled. Designers translated ideas into prototypes. The PD process was prolonged due to the hierarchical hospital environment, business considerations, and additionally required evidence. The FfC program produced an effective new food service for the whole hospital. The I&S initiative developed a podcast, two articles, and a prototype website. The IM project developed a pilot study.Conclusions: For a PD process to successfully develop care for AYAs, one needs to use designers and skilled people, PD tools, and an open-ended approach to visualize and materialize new forms of care. Furthermore, recruitment and facilitation techniques help leverage knowledge and create a synergy in a democratic environment between stakeholders. Show less
Purpose: Negative impact of cancer on sexuality is widely known. In adolescents and young adults with cancer (AYA; 15-39 years), treatment can even have a bigger impact as it may interfere with... Show morePurpose: Negative impact of cancer on sexuality is widely known. In adolescents and young adults with cancer (AYA; 15-39 years), treatment can even have a bigger impact as it may interfere with sexual development. AYAs report unmet psychosexual needs, like inadequate support from health care professionals (HCPs). The aim of this study was to determine preferences of AYAs regarding communication about intimacy and sexuality and examine discrepancies between AYA and HCP.Methods: A cross-sectional survey was conducted among AYAs and HCPs in the Netherlands.Results: Communication about sexuality was considered important by >90% of AYAs and HCPs. Of the AYAs, 41% did receive information from a HCP, 21% of them was satisfied with it. HCPs held physicians and nurse practitioners responsible to discuss sexuality; AYAs preferred nurse practitioners and sexologists. Main barriers to initiate a discussion on sexuality are "feeling of shame" for AYAs and "presence of a third party" for HCPs. Most AYAs would like to receive information about sexuality through a website (66%) or conversation with a HCP (64%) before start of treatment (64%). HCPs would be helped by written material (75%) and additional training (71%) to give to AYAs.Conclusion: AYAs do report unmet needs regarding adequate communication about sexuality-related issues. Discrepancy between patients and HCPs illustrates the importance of patient participation. Future research needs to focus on interventions to improve sexuality-related information provision and implementation of these interventions. Show less
This paper examines the productive role of secrecy in the nexus of transnational mobility, kinship, and intimate relations among Ghanaian-Dutch and Somali-Dutch in the Netherlands. Whereas secrecy... Show moreThis paper examines the productive role of secrecy in the nexus of transnational mobility, kinship, and intimate relations among Ghanaian-Dutch and Somali-Dutch in the Netherlands. Whereas secrecy is typically understood as one person concealing knowledge from another, implying the latter’s passivity, we argue that secrecy depends on mutually constitutive interactions. Secrecy is explored as the result of an interaction between those who obscure knowledge in creative ways and those who maintain a not-knowing. The paper analyzes how people negotiate moral expectations regarding sexuality, respect, and loyalty, while also manoeuvring to fulfil their personal aspirations. Especially in kinship relations, when people are bound to each other by moral and social obligations, the management of secrecy often makes people mutually dependent. Secrecy is revealed as skillfully choreographing relations by the ebb and flow of information where kinship, respect, or love and (not-) knowing reinforce another. Show less
Dewinter, J.; Parys, H. van; Vermeiren, R.; Nieuwenhuizen, C. van 2017
Rede uitgesproken bij de aanvaarding van het ambt van Bijzonder hoogleraar Religie en Seksualiteit in Afrika aan de Faculteit der Maatschappij- en Gedragswetenschappen van de Universiteit van... Show moreRede uitgesproken bij de aanvaarding van het ambt van Bijzonder hoogleraar Religie en Seksualiteit in Afrika aan de Faculteit der Maatschappij- en Gedragswetenschappen van de Universiteit van Amsterdam op woensdag 24 juni 2015 Show less
The study of sexuality in Ethiopia has until now remained largely the domain of medical scientists, public health professionals and epidemiologists; barely touched upon by sociologists,... Show moreThe study of sexuality in Ethiopia has until now remained largely the domain of medical scientists, public health professionals and epidemiologists; barely touched upon by sociologists, anthropologists and other social scientists. To the author's knowledge, no study has been carried out about the perceptions of different sexual practices in Ethiopia. This book is therefore a pioneering work that explores how young people in the Ethiopian town of Dessie express their sexuality and are experiencing HIV/AIDS in their daily lives. It also considers how poverty and other related structural factors are linked to HIV/AIDS infection and other processes affecting the sexuality of young people, how young people and key informants receive, interpret and evaluate ongoing interventions, and what can be done to reduce infection rates. The book provides insights into the role and interrelationship of the underlying structural, social and cultural factors in the context of HIV/AIDS transmission and prevention. Show less
