Objective: To investigate patient preferences and the determinants of participation willingness in or-thopaedic diagnostic or invasive surgical randomized controlled trials.Methods: This... Show moreObjective: To investigate patient preferences and the determinants of participation willingness in or-thopaedic diagnostic or invasive surgical randomized controlled trials.Methods: This observational study included one hundred patients visiting an orthopaedic clinic. The pa-tients answered if they were willing to participate in a hypothetical invasive and diagnostic trial among patients with a distal radius fracture.Results: We found no difference in participation willingness in either the invasive surgical (66/100) or the diagnostic trial (68/100, p = 0.76). Willingness to participate was not associated with age, gender, country of origin, level of education, marital status, or distance of home from the hospital with the confidence interval for all odds ratios including the value 1. Patients who expressed willingness to participate do so because they wanted to contribute to science; patients who declined to participate wanted to speak with a doctor and to be better informed.Conclusion: This study showed a high rate of willingness to participate in orthopaedic surgical invasive trials and in diagnostic trials. Nevertheless, to ensure participation, it is recommended to put emphasis on the contribution to science and to give adequate information about the trial including the opportunity to talk to a doctor.(c) 2022 Elsevier Ltd. All rights reserved. Show less
Many cities in the United States are pursuing agendas to implement ICT-based solutions to tackle urban challenges, thus achieving the ‘smart city’ label. While the discussion on this urban... Show moreMany cities in the United States are pursuing agendas to implement ICT-based solutions to tackle urban challenges, thus achieving the ‘smart city’ label. While the discussion on this urban development paradigm has revolved around the intensive use of technologies, the academic literature increasingly calls for shifting the focus to the people living in the cities. This paper argues that to achieve a people-centred smart city, cities should include the perspectives of all the local stakeholders. Under this assumption, this paper provides the views of the local stakeholders in a medium-sized city in Tennessee, Chattanooga. Particularly, this study explores their perceived smart city concept, the ethical standards that should guide smart city projects, the desired future projects in their community, and the barriers to implementing them. The data was collected using a combination of participatory budgeting, five focus groups, and twenty-eight interviews with city dwellers, entrepreneurs, university faculty, non-profit members, and government officials. The results suggest that, far from the image of a highly technological city, the stakeholders envision a city dedicated to improving the quality of life and environmental sustainability. Furthermore, to achieve this smart city, the projects need to be based on full transparency and the promotion of social inclusion. In contrast to the dominant trend towards the privatization of urban space, this study finds that the stakeholders prefer public based smart city projects such as ICT-based public transport services. However, its successful implementation will have to overcome the barriers caused by funding constraints, public acceptance, and political interests. Cities may use the results of this study to design more responsible smart city projects that strike an optimal point between citizen engagement and technological applications and innovations while supporting all stakeholders’ needs. Show less
Objectives: Visuospatial neglect (VSN) is a common cognitive disorder after stroke. The primary aim of this systematic review was to provide an overview of the impact of VSN in 3 aspects: (1)... Show moreObjectives: Visuospatial neglect (VSN) is a common cognitive disorder after stroke. The primary aim of this systematic review was to provide an overview of the impact of VSN in 3 aspects: (1) activities of daily living (ADL), (2) participation, and (3) caregiver burden. The second aim was to investigate the differences in studies focusing on populations with mean age < 65 versus >= 65 years.Methods: PubMed, EMBASE, Web of Science, Cochrane Library, Emcare, PsychINFO, Academic Search Premier and CENTRAL were searched systematically. Quality was assessed with the Mixed Methods Appraisal Tool.Results: Of the 115 included studies, 104 provided outcomes on ADL, 15 on participation (4 studies with mean age >= 65), and 2 on caregiver burden (1 study with mean age >= 65). Quality assessment yielded scores ranging from 0 to 100%. VSN had a negative impact on ADL (i.e., independence during ADL and performance in self-care, household tasks, reading, writing, walking, wheelchair navigation) and participation (i.e., driving, community mobility, orientation, work). The impact of VSN on fulfilling social roles was unclear. VSN had a negative effect on caregiver burden. We found no clear age-related differences.Conclusions and implications: VSN has a negative impact not only on patients' independence but particularly on the performance of ADL. Despite the far fewer studies of VSN as compared with ADL, VSN also seems to hamper participation and increase caregiver burden, but further research is needed. Because of the large impact, VSN should be systematically and carefully assessed during rehabilitation. A considerable number of different instruments were used to diagnose VSN. Diagnosing VSN at more than one level [function (i.e., pen-and-paper test), activities, and participation] is strongly recommended. Consensus is needed on how to assess VSN and its negative impact for research and rehabilitation practice. (C) 2019 Elsevier Masson SAS. All rights reserved. Show less
Uem, J.M.T. van; Marinus, J.; Canning, C.; Lummel, R. van; Dodel, R.; Liepelt-Scarfone, I.; ... ; Maetzler, W. 2016
Conclusion: Results indicate that beliefs regarding the cause and controllability of problems are important to understand parents' motivation to participate in parenting support. Notable... Show moreConclusion: Results indicate that beliefs regarding the cause and controllability of problems are important to understand parents' motivation to participate in parenting support. Notable differences were found regarding the period during the child's life that parenting support was perceived as most relevant. Motivation to participate was higher during various stages of transition, which ranged from the transition to parenthood, to toddlerhood, the age of seven, and adolescence. (C) 2016 Elsevier Ltd. All rights reserved. Show less
Grootens-Wiegers, P.; Vries, M.C. de; Beusekom, M.M. van; Dijck, L. van; Broek, J.M. van den 2015
