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(1 - 20 of 22)

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Electronic reporting of rare endocrine conditions within a clinical network
Starting point for benchmarking outcomes and reporting of pituitary adenoma surgery within the European Reference Network on Rare Endocrine Conditions (Endo-ERN): results from a meta-analysis and survey study
A critical evaluation of the EU-virtual consultation platform (CPMS) within the European Reference Network on Rare Endocrine Conditions
Endo-ERN in its fifth year: a pinch of care, science, curiosity and new horizons
Access to patient oriented information-a baseline Endo-ERN survey among patients with rare endocrine disorders
Patients with rare endocrine conditions have corresponding views on unmet needs in clinical research
CPMS-improving patient care in Europe via virtual case discussions
Introduction to Endo-ERN-scope and mission
Educational and knowledge gaps within the European reference network on rare endocrine conditions
Patients with rare endocrine conditions have corresponding views on unmet needs in clinical research
The EuRRECa project as a model for data access and governance policies for rare disease registries that collect clinical outcomes
Recommendations for diagnosis and treatment of pseudohypoparathyroidism and related disorders
An overview of clinical activities in Endo-ERN
Genetic testing in inherited endocrine disorders: joint position paper of the European reference network on rare endocrine conditions (Endo-ERN)
Peptide hormone analysis in diagnosis and treatment of differences of sex development
Clinical but Not Histological Outcomes in Males With 45,X/46,XY Mosaicism Vary Depending on Reason for Diagnosis
The current landscape of European registries for rare endocrine conditions
Diagnosis and management of pseudohypoparathyroidism and related disorders: first international Consensus Statement
Diagnosis and Management of Pseudohypoparathyroidism and Related Disorders: First International Consensus Statement
Birth Weight in Different Etiologies of Disorders of Sex Development

Pages