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haemophilia
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hemophilia A
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Patients' and health care providers' perspectives on quality of hemophilia care in the Netherlands
Neurocognitive, psychosocial, and quality of life outcomes after multisystem inflammatory syndrome in children admitted to the PICU
Physical, mental, and social health of adult patients with sickle cell disease after allogeneic hematopoietic stem cell transplantation
Late effects in pediatric allogeneic hematopoietic stem cell transplantation for nonmalignant diseases
Internalizing problems before and during the COVID-19 pandemic in independent samples of Dutch children and adolescents with and without pre-existing mental health problems
Measuring anxiety and depression in young adult men with haemophilia using PROMIS
Validation of PROMIS Profile-29 in adults with hemophilia in the Netherlands
Mental and Social Health of Children and Adolescents With Pre-existing Mental or Somatic Problems During the COVID-19 Pandemic Lockdown
Mental and social health of children and adolescents with pre-existing mental or somatic problems during the COVID-19 pandemic lockdown
Psychometric properties of the pediatric patient-reported outcomes measurement information system item banks in a Dutch clinical sample of children with juvenile idiopathic arthritis
Illness cognitions associated with health-related quality of life in young adult men with haemophilia
Psychometric Properties of the Pediatric Patient-Reported Outcomes Measurement Information System (PROMIS (R)) Item Banks in a Dutch Clinical Sample of Children with Juvenile Idiopathic Arthritis
Professional functioning of young adults with congenital coagulation disorders in the Netherlands
Patient Reported Outcomes in Pediatric Oncology Practice: Suggestions for Future Usage by Parents and Pediatric Oncologists