Recommendations for Improving the Quality of Rare Disease Registries

Kodra, Y.; Weinbach, J.; Posada-de-la-Paz, M.; Coi, A.; Lemonnier, S.L.; Enckevort, D. van; ... ; Taruscio, D. (2018)

Article / Letter to editor

• rare diseases
• patient registry
• quality

• All authors: Kodra, Y.; Weinbach, J.; Posada-de-la-Paz, M.; Coi, A.; Lemonnier, S.L.; Enckevort, D. van; Roos, M.; Jacobsen, A.; Cornet, R.; Ahmed, S.F.; Bros-Facer, V.; Popa, V.; Meel, M. van; Renault, D.; Gizycki, R. von; Santoro, M.; Landais, P.; Torreri, P.; Carta, C.; Mascalzoni, D.; Gainotti, S.; Lopez, E.; Ambrosini, A.; Muller, H.; Reis, R.; Bianchi, F.; Rubinstein, Y.R.; Lochmuller, H.; Taruscio, D.
• Date: 2018-08-31
• Journal: International Journal of Environmental Research and Public Health
• Volume: 15
• Issue: 8
• DOI: doi:10.3390/ijerph15081644
• Link: https://www.mdpi.com/1660-4601/15/8/1644