Documents
-
- Download
- Title Pages_Contents
- open access
-
- Download
- Chapter 2
- open access
- Full text at publishers site
-
- Download
- Chapter 3
- open access
- Full text at publishers site
-
- Download
- Chapter 4
- open access
- Full text at publishers site
-
- Download
- Chapter 6
- open access
- Full text at publishers site
-
- Download
- Chapter 8: Summary in English
- open access
-
- Download
- Summary in Dutch_References
- open access
-
- Download
- Propositions
- open access
In Collections
This item can be found in the following collections:
Quality palliative care for all - WANT IT! - towards death, while alive
Background
Non-communicable diseases are currently the leading cause of death in the Netherlands. Meeting the increasingly complex care needs of patients with these diseases is demanding for society and our healthcare services.
Specialist palliative care diminishes inappropriate end-of-life care and improves quality of life for patients with advanced cancer and other life-limiting diseases.
Aims & Methods
Using 2 national cross-sectional surveys and 2 population-based observational studies, we assessed the value, availability and accessibility of palliative care in the Dutch healthcare system. Using a modified Delphi technique, we developed a national quality framework for palliative care with key elements for integration with regular care.
Results
Timely provision of generalist and specialist palliative care is associated with significantly less potentially inappropriate end-of-life care for...
Background
Non-communicable diseases are currently the leading cause of death in the Netherlands. Meeting the increasingly complex care needs of patients with these diseases is demanding for society and our healthcare services.
Specialist palliative care diminishes inappropriate end-of-life care and improves quality of life for patients with advanced cancer and other life-limiting diseases.
Aims & Methods
Using 2 national cross-sectional surveys and 2 population-based observational studies, we assessed the value, availability and accessibility of palliative care in the Dutch healthcare system. Using a modified Delphi technique, we developed a national quality framework for palliative care with key elements for integration with regular care.
Results
Timely provision of generalist and specialist palliative care is associated with significantly less potentially inappropriate end-of-life care for patients with advanced cancer.
The majority of patients with cancer received no palliative care or only in their last weeks or days of life. Specialist palliative care teams were found to be available in almost all hospitals, but referrals to these teams were consistently low. Our findings implicate a limited availability and accessibility of palliative care.
Eight key elements of the Netherlands Quality Framework for Palliative Care were prioritised to improve availability and accessibility to quality palliative care.
Show less- All authors
- Boddaert, M.S.A.
- Supervisor
- Linden, Y.M. van der
- Co-supervisor
- Raijmakers, N.J.H.; Fransen, H.P.
- Committee
- Bussemaker, M.; Cannegieter, S.C.; Merkx, M.A.W.; Wymenga, A.N.M.
- Qualification
- Doctor (dr.)
- Awarding Institution
- Faculty of Medicine, Leiden University Medical Center (LUMC) , Leiden University
- Date
- 2023-03-15
- ISBN
- 9789464730258
Funding
- Sponsorship
- Integraal kankercentrum Nederland (IKNL); Department of Radiation Oncology of Leiden University Medical Center (LUMC); Centre of Expertise in Palliative care (LUMC)