Living well with chronic kidney disease: ehealth interventions to support self-management in China

Shen, H. (2021)

Doctoral Thesis

Chronic kidney disease (CKD) poses a major challenge to public health. China, a middle-income country, is the largest country globally with a current population of 1.4 billion. China accounts for around one fifth of the global burden of CKD. Hence, eHealth self-management interventions are a great potential to Chinese populations. An extensively studied CKD self-management eHealth intervention is the Dutch ‘Medical Dashboard (MD)’. It has been demonstrated effective in decreasing the burden of CKD. To aim of this thesis is to inform the adaptation and evaluation of a tailored CKD self-management eHealth intervention in China based on the Dutch MD intervention. Specific characteristics and needs (e.g. facilitators and barriers) in Chinese settings need to be addressed to optimize the implementation of CKD self-management eHealth intervention. Emphasis should be placed on addressing the existing paternalistic patient-HCP relationship, stakeholder involvement in the development and implementation process, adjusting eHealth design features to fit the clinical workflows, and providing the needed support and training. This thesis is a vital step towards the design and implementation of a tailored eHealth solution to improve health outcomes of patients with CKD and address the high burden of CKD in China.

• Chronic kidney disease
• Self-management
• eHealth
• Intervention
• Implementation Science

• All authors: Shen, H.
• Supervisor: Chavannes, N.H.
• Co-supervisor: Boog, P.J.M. van der; Kley-van der Sluijs, M.J.J. van der
• Committee: Atsma, D.E.; Evers, A.W.M.; Crone, M.R.; Nurmohamed, S.A.
• Qualification: Doctor (dr.)
• Awarding Institution: Faculty of Medicine, Leiden University Medical Center (LUMC), Leiden University
• Date: 2021-10-14
• ISBN (print): 9789492597816
• Sponsorship: China Scholarship Council