Persistent URL of this record https://hdl.handle.net/1887/3184723
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- ijerph-17-08743-v2_oe1oe
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The EuRRECa project as a model for data access and governance policies for rare disease registries that collect clinical outcomes
- All authors
- Ali, S.R.; Bryce, J.; Tan, L.E.; Hiort, O.; Pereira, A.M.; Akker, E.L.T. van den; Appelman-Dijkstra, N.M.; Bertherat, J.; Cools, M.; Dekkers, O.M.; Kodra, Y.; Persani, L.; Smyth, A.; Smythe, C.; Taruscio, D.; Ahmed, S.F.
- Date
- 2020-12-01
- Volume
- 17
- Issue
- 23