The development and validation of the Leiden Bother and Needs Questionnaire for patients with pituitary disease: the LBNQ-Pituitary

Abstract

Conclusions The LBNQ-Pituitary can be used to assess the degree to which patients are bothered by the consequences of the pituitary disease, as well as their needs for support. It could also facilitate an efficient assessment of patients' needs for support in clinical practice. We postulate that paying attention to needs for support will lead to optimal patient care (e.g., improvement in psychosocial care), and positively affect QoL.

Patient-reported outcomeNeedsQuality of lifeIllness perceptionsPituitary adenomasAcromegalyCushing's diseaseCushing's syndromeProlactinomaNon-functioning pituitary macroadenomaHypopituitarism