Recommendations for Improving the Quality of Rare Disease Registries
- Author(s):
- Kodra, Y.; Weinbach, J.; Posada-de-la-Paz, M.; Coi, A.; Lemonnier, S.L.; Enckevort, D. van; Roos, M. (0000-0002-8691-772X); Jacobsen, A.; Cornet, R.; Ahmed, S.F.; Bros-Facer, V.; Popa, V.; Meel, M. van; Renault, D.; Gizycki, R. von; Santoro, M.; Landais, P.; Torreri, P.; Carta, C.; Mascalzoni, D.; Gainotti, S.; Lopez, E.; Ambrosini, A.; Muller, H.; Reis, R.; Bianchi, F.; Rubinstein, Y.R.; Lochmuller, H.; Taruscio, D.
- Published
- 2018
- Publication type
- Article / Letter to editor
rare diseasespatient registryquality
- Date issued
- 2018-08-31
- Language
- English
- Is part of
- International Journal of Environmental Research and Public Health (2018), No. 8
- hdl
- 1887/86526
- doi
- 10.3390/ijerph15081644
- URL
- https://www.mdpi.com/1660-4601/15/8/1644
