A patient and caregiver education program : in Parkinson's disease, Huntington's disease, and other chronic diseases

Author(s):
A'Campo, L.E.I.
Published
2012
Publication type
Doctoral Thesis

Abstract

The general aim of this thesis was to assess the effectiveness of a standardized psychosocial education program. The first studies of this thesis were aimed to assess the effectiveness of the Patient Education Program for Parkinson__s disease (PEPP), as the original program was directed at Parkinson__s disease. Thereafter, it was aimed to assess the program__s feasibility in other diseases. A second step in the thesis was an evaluation of the feasibility of the program adapted to a new disease-specific form for Huntington__s disease (PEP-HD). The third step was to evaluate a generic form of the program in a heterogeneous group of patients with chronic diseases and co-morbid psychiatric problems (PEP-CD).

Quality of lifePsychosocialHuntington's diseaseParkinson's diseaseSelf-managementCaregiverPatient Education
Defense date
2012-06-05
Language
English
Supervisor(s)
Roos, R.A.C.
Advisor(s)
Kamminga, N.G.A.
Qualification
Ph.D.
Degree granting institution
Leiden University Medical Center (LUMC), Leiden University, Leiden
hdl
1887/19043
ISBN(s)
9789053355428

Funding

Sponsorship
Financial support for the publication of this thesis was provided by the Dutch Huntington Association (Vereniging van Huntington); the Dutch Parkinson’s Disease Society (Parkinson Patiënten Vereniging); Boehringer Ingelheim; and the Alkemade-Keuls Foundation